Continuing our journey through ALS Canada’s priorities
We are pleased to highlight the transformative role of advocacy within the organization. Advocacy is the force behind significant policy changes and system-level actions that bring hope and necessary resources, care, and treatment options to people affected by ALS.
A united voice for change
At ALS Canada, we harness the collective experiences of people living with ALS to drive meaningful change. Our advocacy efforts are focused on creating a more supportive environment for people with ALS by engaging with government officials and key decision-makers on both federal and provincial (Ontario) levels. Your support enables us to fight for equitable, timely, and affordable access to therapies, improved home and community care and increased research funding to accelerate the discovery of new treatments and, ultimately, a cure for ALS.
Empowering through policy engagement
Our advocacy work is grounded in the following:
- Policy Influence: We advocate for changes that look to significantly impact the lives of people with ALS today and in the future.
- Community Collaboration: We empower individuals affected by ALS to share their stories, demonstrating the real human impact ALS has on people’s lives. These stories are central to our push for faster access to therapies, increased research funding, and a more responsive healthcare system.
Recent achievements and ongoing efforts
- Through collective action, ALS Canada, alongside key members of the ALS community, has secured the Ontario Government’s commitment of $13 million over three years in the 2024 Fall Economic Statement to support the Ontario Provincial ALS Program.
- We have successfully advocated for swifter drug approval processes and increased government investment in ALS research.
- Our collaborative efforts continue to support the approval and reimbursement of new therapies, making Canada a leader in accessible treatment options for ALS.
- ALS Canada’s Canadian ALS Learning Institute (CALI) empowers participants with knowledge crucial for effectively advocating for access to Health Canada-approved therapies, strengthening their ability to influence healthcare outcomes.
Each story shared and every policy influenced echoes your role in this journey—your contributions enable these vital advocacy activities, ensuring that the voices of the ALS community are heard loud and clear.
Join us in our advocacy efforts
Get involved and help us continue to advocate for necessary changes in ALS care and research. Together, we are not just advocating; we are making real changes that make lasting improvements for people affected by ALS.
Thank you for your unwavering support and for believing in the power of advocacy. This series’s next and final post will explore how we disseminate knowledge, empowering the ALS community with information and advancing awareness and understanding of ALS.