Amanda Tam has been navigating life with an ALS diagnosis since late 2021. Just entering her 20s, a terminal diagnosis is not something any young person would anticipate facing. Still, when confronted with it, Amanda chose to share her story online in hopes of raising awareness. Amassing thousands of followers on various social media platforms, her videos, entwined with “dark humour”, illustrate life with ALS with the aim of drawing attention to the fact that ALS can impact anyone.  

In her words, hear from Amanda in the video below.

“In My Words” is an ALS Canada story series illustrating life impacted by ALS through first-person storytelling. Whether that’s through the written word, audio, art, music, etc., community members will share their experience in their own way. 

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