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  • News

News

We deliver information that you can trust, informing you about the latest advances in ALS research, as well as upcoming events.

    Advocacy

    Making ALS a priority, today and tomorrow

    June 01, 2023
    Today the ALS Society of Canada (ALS Canada) recognizes the start of ALS Awareness Month across the country. Join us as we raise awareness for amyotrophic lateral sclerosis (ALS), a devastating disease that affects nearly 4,000 Canadians currently diagnosed and…
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    ALS Canada Kevin Daly Bursary

    Applications open for ALS Canada Kevin Daly Bursary in support of Canadian students touched by ALS

    May 16, 2023
    Celebrating ALS community member Kevin Daly, a new bursary of $2,500 supports the financial needs of post-secondary students Toronto, ON – In partnership with the friends and colleagues of ALS community member Kevin Daly, the ALS Society of Canada (ALS Canada) is pleased…
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    Research

    Qalsody (tofersen) has been approved in the United States and the European Union as a treatment targeting a genetic cause of ALS

    May 03, 2023
    On April 25, 2023, the U.S. Food and Drug Administration (FDA) approved Qalsody (tofersen) for the treatment of SOD1-ALS under the Accelerated Approval pathway. On May 30, 2024, the European Commission (EC) has granted marketing authorization for Qalsody (tofersen) under…
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    Research

    ALS Canada Research Update, March 2023

    March 28, 2023
    ALS researchers from around the world continue to build upon existing work and make new discoveries in the hopes of realizing a future without ALS. In the March 2023 Research Update, you’ll learn about the progress researchers have made in…
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    Research

    ALS Canada and Brain Canada invest more than $1.4 million in ALS research grants 

    March 22, 2023
    Nine projects to advance the ALS research landscape funded through ALS Society of Canada and Brain Canada partnership, with support from the Dr. Jean-Pierre Canuel Fund – SLA Québec. Toronto – The ALS Society of Canada (ALS Canada) and Brain…
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    Press Releases

    The Federal Government announces the National Strategy for Drugs for Rare Diseases

    March 22, 2023
    Today, the Federal Government announced the National Strategy for Drugs for Rare Diseases. We are pleased to see this strategy move forward and hope it will be a significant step in building knowledge and improving access to therapies for people…
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    Advocacy

    ALS Canada Advocacy Update – January- March 2023

    March 15, 2023
    This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,…
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    Research

    Investing in the future change-makers of ALS research

    March 07, 2023
    The ALS Society of Canada (ALS Canada) and Brain Canada are investing in the future of innovative scientists who are changing the landscape of amyotrophic lateral sclerosis (ALS) research and treatments in Canada. Together they are contributing a total of…
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    The Standards Program Trustmark is a mark of Imagine Canada used under licence by the ALS Society of Canada. Registration No. 10670-8977-RR0002.

    2026 Amyotrophic Lateral Sclerosis Society of Canada

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