News

ALS researchers worldwide continue to build on existing work and make new discoveries in the hopes of a world free of ALS. In the November 2025 Research Update, explore new insights into clinical trials, biomarkers, and strategies for understanding and…

In our blog series, Inside the Science, we break down and discuss trending topics in ALS research, making complex science accessible to anyone affected by ALS.   For much of ALS research history, clinicians could only track the disease by observing…

This blog series is a place for the ALS community to learn about and stay updated on ALS Canada's advocacy efforts as well as relevant developments within the government. Please note that because ALS Canada…

The approval of Qalsody (tofersen) by Health Canada marked a transformative moment in the treatment of ALS caused by pathogenic variants in the SOD1 gene. This new genetic therapy offers hope for a subset of people with ALS and marks…

Advocates on Parliament Hill call for immediate federal investment to accelerate progress, protect Canadian research data, and build on Canada’s leadership in ALS research to drive innovation OTTAWA, October 2, 2025  – Today, people living with amyotrophic lateral sclerosis…

Cyclists gear up for a challenge along scenic vineyard routes to fuel research and support for people living with ALS JORDAN, ON, October 1, 2025 – On Sunday, October 5, cyclists will take to the rolling vineyards and country…

From the Research Desk highlights recent activities and accomplishments from the ALS Canada Research Team, and what is happening in the ALS research world. By actively engaging with the global ALS community, supporting ALS research advancements, and providing knowledge to people affected by…

The story of CALNISC and CAPTURE ALSTen years ago, Canada was falling behind in studying people living with ALS.   The biggest, most impactful way to study the complexity and variability of ALS is through observational studies that…