News

Advocates on Parliament Hill call for immediate federal investment to accelerate progress, protect Canadian research data, and build on Canada’s leadership in ALS research to drive innovation OTTAWA, October 2, 2025  – Today, people living with amyotrophic lateral sclerosis…

Cyclists gear up for a challenge along scenic vineyard routes to fuel research and support for people living with ALS JORDAN, ON, October 1, 2025 – On Sunday, October 5, cyclists will take to the rolling vineyards and country…

From the Research Desk highlights recent activities and accomplishments from the ALS Canada Research Team, and what is happening in the ALS research world. By actively engaging with the global ALS community, supporting ALS research advancements, and providing knowledge to people affected by…

The story of CALNISC and CAPTURE ALSTen years ago, Canada was falling behind in studying people living with ALS.   The biggest, most impactful way to study the complexity and variability of ALS is through observational studies that…

High-energy fundraiser challenges teams to pull a 42,000-lb transport truck in support of people affected by ALS TORONTO, September 17 – This fall, the ALS Society of Canada (ALS Canada) is taking its adrenaline-pumping Pull to End ALS fundraiser…

For more than 30 years, the ALS Canada Research Program has been supporting Canadian researchers through foundational grants, investing in early-stage ideas. These initial investments often laid the groundwork for follow-up funding, enabling promising projects to scale and evolve into…

Honouring Kevin Daly’s legacy of supporting young people affected by ALS as they pursue their dreams and contribute to a world free of ALS TORONTO – September 4, 2025 — The ALS Society of Canada (ALS Canada) and the…

The ALS Society of Canada (ALS Canada) is pleased to announce that Maya Binet, MSc, has assumed the role of Canada’s first ALS National Genetic Counsellor. Based at the University of Calgary, this new position is part of a two-year,…