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News

We deliver information that you can trust, informing you about the latest advances in ALS research, as well as upcoming events.

    Press Releases

    39 members of the Canadian ALS community honoured with King Charles III Coronation Medal

    March 13, 2025
    Medals were presented to Canadians to recognize their contributions to advocacy, research, and support towards a world free of ALS Toronto, ON - The ALS Society of Canada (ALS Canada) was honoured to be selected to recognize 39 Canadians…
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    ALS Canada

    ALS Canada launches new Children and Youth Resource Hub to help families share information

    March 12, 2025
    The ALS Society of Canada (ALS Canada) is proud to launch the Children and Youth Resource Hub to provide children, youth, and families with important educational materials that support the understanding of amyotrophic lateral sclerosis (ALS) – a disease that…
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    Advocacy

    ALS Canada submits patient input submission for Canada’s Drug Agency’s review of QALSODY (tofersen)

    March 11, 2025
    ALS Canada has submitted the patient input submission for Canada’s Drug Agency (CDA)’s review of QALSODY (tofersen), a therapy recently approved by Health Canada. This submission is a crucial step in ensuring that voices of the ALS community are reflected…
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    Press Releases

    ALS Canada and Brain Canada invest more than $1.1 million to fuel discoveries and understanding of ALS

    March 05, 2025
    TORONTO —Eight Canadian research projects have been awarded funding to drive progress and innovation in amyotrophic lateral sclerosis (ALS) research through the 2024 ALS Canada-Brain Canada Discovery Grant Program, with a total investment of $1,170,000 from the ALS Society of…
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    Therapies

    QALSODY (tofersen injection) approved as a treatment for SOD1-ALS in Canada with Conditions

    March 03, 2025
    Health Canada has approved QALSODY (tofersen injection) under a Notice of Compliance with Conditions (NOC/c) for the treatment of ALS in adults who have a pathogenic variant (also known as a mutation) in the superoxide dismutase 1 (SOD1) gene. This…
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    Research

    Inside the Science: Brain-Computer Interface and ALS

    February 28, 2025
    What is a Brain-Computer Interface (BCI)?A brain-computer interface (BCI) is a system that allows direct communication between the brain and an external device, such as a computer. BCI studies often include participants living with ALS, as the technology holds…
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    Research

    Supporting advancements in ALS care with the 2024 Mitsubishi Tanabe Pharma Canada Fellowship

    February 13, 2025
    The ALS Society of Canada (ALS Canada) is proud to once again partner with Mitsubishi Tanabe Pharma Canada to support promising advancements in ALS care through the 2024 Mitsubishi Tanabe Pharma Canada Fellowship. This fellowship funds individuals dedicated to improving clinical care for people…
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    Advocacy

    ALS Canada Advocacy Update, October-December 2024

    January 16, 2025
    This series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario, these…
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    2025 Amyotrophic Lateral Sclerosis Society of Canada

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