Available Resources

The ALS National Genetics Counsellor (ALSNGC) serves as a central point of contact for connecting Canadians with genetics resources, in addition to providing direct, virtual counselling to those with limited access to timely genetic counselling. 

This resource provides basic information on the genetics of ALS, support for families affected on how to approach conversations about genetics with children and youth, and genetic testing considerations for at-risk adults. We recommend using this resource as an addition to genetic counseling, wherever you are in the world.

In familial ALS, an inherited genetic mutation causes ALS. Many different genetic mutations have been linked to ALS, and not all families have the same mutation as the cause of their disease.

Glossary of Genetic Terms

Explore ALS genetics in one place. The ALS Canada Gene Hub provides accessible information on how genetics contribute to ALS, major ALS-related genes, gene-targeted therapies, genetic counselling and testing, research participation opportunities, and updates on ALS genetics.