Available Resources

For the first time, there’s an approved treatment for people living with SOD1-ALS. Now, we need to ensure everyone who may benefit can access it through public reimbursement, regardless of where they live.

Whatever your fundraising event may be, this toolkit will guide you through the process of organizing your own event – from brainstorming ideas to wrapping it all up!

The ALS Canada Caregiver Mental Health Program provides up to four one-on-one virtual therapy sessions with a registered therapist from AWC Grief Support. These personalized sessions are designed to support caregivers currently caring for someone living with ALS.

Our support groups provide connection and community for those affected by ALS.

Community Leads provide personalized support, information, and connections to resources for people affected by ALS. 

In our blog series, Inside the Science, we break down and discuss trending topics in ALS research, making complex science accessible to anyone affected by ALS.  

Clinical Trials are a critical part of developing new ALS treatments. Learn more about how clinical trials work, find trials in Canada, get your questions answered, and find further resources.

Looking for an ALS clinical trial or how to contribute to research? Browse current studies recruiting in Canada, with information on what intervention is being tested, eligibility, locations, and next steps for interested participants.

Stay informed with ALS Canada’s research updates, featuring the latest clinical trial news, lab discoveries, emerging therapies, and advances in clinical care. Explore clear, evidence-based summaries that help make sense of new findings and what they may mean for people affected by ALS.

This monthly Q&A drop-in session is available for people living with ALS, their families, caregivers, and anyone close to someone living with the disease who is seeking information or might have questions about ALS research and/or clinical trials.

ALS Clinical Trials Unboxed is a webinar series that explores ongoing ALS clinical trials in Canada. Hear directly from the companies and researchers leading these studies, and have your questions answered during a live Q&A session.

New to ALS research? Explore answers to common questions about clinical trials, what ALS researchers are studying, treatment development, and where research funding is going.

Explore environmental factors and their relationship to ALS, how they may interact with genetics, and what the current evidence and scientific consensus tell us. 

The ALS National Genetics Counsellor (ALSNGC) serves as a central point of contact for connecting Canadians with genetics resources, in addition to providing direct, virtual counselling to those with limited access to timely genetic counselling. 

This resource provides basic information on the genetics of ALS, support for families affected on how to approach conversations about genetics with children and youth, and genetic testing considerations for at-risk adults. We recommend using this resource as an addition to genetic counseling, wherever you are in the world.

ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. There are few effective treatments for ALS and no cure.

Receiving an ALS diagnosis is devastating for all involved. It is normal to feel lost, frightened and unsure of what to do next or who to turn to.

Amyotrophic lateral sclerosis, multiple sclerosis, and muscular dystrophy can sometimes be confused as the characteristics and symptoms of these diseases can overlap. People living with ALS, MS, and MD often require the same kinds of wheelchairs and assistive devices. However, ALS, MS, and MD are separate and distinct diseases.