The ALS Canada Gene Hub is intended to serve as a central resource for global ALS genetic information and opportunities. The Gene Hub provides a large amount of information, from an overview of how genetics work, to resources on genetic counselling and testing – where you go within the Gene Hub can depend on your level of understanding of genetics and what kind of information you’re looking for.
What is the Gene Hub and how do I use it?
Main topics
Explore foundational genetics, testing guidance, and research pathways in ALS.
The basics of ALS genetics
Explore the basic concepts of genetics and what role it plays in ALS.
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Genetic testing for ALS
Genetic Testing is used to identify mutated genes in DNA that are linked to ALS.
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Research opportunities
Discover clinical trials and observational studies focused on genetic ALS.
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Our commitment
The ALS Society of Canada (ALS Canada) is committed to a future where anyone living with ALS, or with a known genetic risk of ALS, understands how genetics may impact them. We aim to provide accurate and relevant information, as well as pathways to action for those who wish to access genetic care.
The ALS Canada Gene Hub is part of our genetics strategy, a multi-pronged approach that involves:
- working with experts across the country to support the evolution of genetic counselling and testing practices;
- attracting top genetically-targeted experimental and proven treatments to Canada;
- exploring opportunities for individuals with high genetic risk for ALS to contribute to research, and work towards better care; and
- support for people with high genetic risk for ALS in line with best practices being developed through global initiatives.