Tammy Moore, CEO of ALS Canada, shares a call to action in an op-ed published in The Hill Times for ALS Awareness Month, highlighting the urgent need to better understand amyotrophic lateral sclerosis (ALS) and its impact on thousands of people and families across Canada through federal investment in the Canadian Collaboration to Cure ALS. With nearly 4,000 Canadians living with ALS, the op-ed points to major gaps in access to research, delays in diagnosis, and unequal access to care, while also drawing attention to emerging evidence linking military service to a higher risk.
Positioned as the opportunity and solution, the Canadian Collaboration to Cure ALS brings people living with ALS, researchers, clinicians and organizations across the country to unify Canada’s research efforts by scaling four high-impact ALS research initiatives – CAPTURE ALS, the Canadian Neuromuscular Disease Registry (CNDR), the Canadian ALS Research Network (CALS) and Access ALS.
Grounded in the experiences of the ALS community, the piece calls for a federal investment in this coordinated research national strategy – representing a critical opportunity to better understand the disease, accelerate research, expand access to clinical trials, and bring hope to people living with ALS.
Read the full op-ed to learn more here: https://www.hilltimes.com/2026/06/03/als-is-devastating-our-military-families-its-time-to-invest-in-research-to-find-out-why