Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

ALS Canada Advocacy Update – December 2021


This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,...

Posted in: Advocacy Update
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Steve may have lost his singing voice, but he hasn’t lost hope


Steve Daly loved to belt out a tune for family and friends. The 50-year-old husband and father of four is known for his extroverted personality and, before being diagnosed with ALS, enjoyed playing hockey, riding road bikes with friends, cooking...

Posted in: Stories

Meeting an urgent need: Why it’s important now more than ever to give


“ALS doesn’t stop. Neither will we.” ALS researcher and ALS Canada Board Member Christine Vande Velde said these words at the start of the pandemic in reference to her team’s work in the lab, but they were quickly adopted as...

Posted in: Stories

Learning from COVID-19 to strengthen support for Ontarians living with ALS


Toronto, ON – The in-home support that the ALS Society of Canada provides to people living with ALS is highly valued by the community it serves and is something it had to evolve after the pandemic made physical distancing a...

Posted in: Support & Services

MAKE YOUR VOICES HEARD: YOUR INPUT IS NEEDED FOR REVIEW OF NEW ALS THERAPY


Update: July 7, 2022: Following Health Canada's approval of ALBRIOZA (AMX0035) under a Notice of Compliance with Conditions (NOC/c), CADTH posted reimbursement recommendations for ALBRIOZA (AMX0035) in late June. ALS Canada provided feedback on the recommendations, bringing forward the perspectives...

Posted in: Advocacy

How does a new experimental treatment for ALS behave within the body?

Clinical trial evaluates the drug enoxacin as a therapeutic option for ALS, add-on studies supported by Discovery Grant


An international Canada-Israel research partnership is taking important steps to determine whether a known drug has the potential to become a viable treatment for people with ALS. Recently, using a mouse model, Dr. Eran Hornstein of the Weizmann Institute of...

Posted in: Research